This past weekend a group of us from the Watertown Area Run Club took an adventure out to Denver to do the Rock N Roll Half Marathon, and 5k. Amanda, Jill, Paula, Sarah, and I, and Tom, who originally was going to run, but could not due to injury, but was out there to help cheer us on. We originally had thought this would be a time to get away to some where different, and run a bigger race. A bigger race it definitely was, but it evolved into something bigger than even we imagined. As we were getting ready the week or 2 before this race, we decided that we should wear our Team FARA shirts, Friedereich’s Ataxia Research Alliance, the cause we were running for in the Twin Cities last year, and show our support in Colorado. We had so many people asking us during the 5K what FA was, and of course we told them! We decided we had not sweat enough in the 5K race that we should all wear them again the next day for the Half Marathon as well. We lost count how many people asked us during the Half Marathon what FA was! It was a great way to help spread the word. Again, FA is an autosomal recessive inherited disease that causes progressive damage to the nervous system. It can lead to gait disturbance, scoliosis, heart conditions, and diabetes. It is progressive, and eventually a wheelchair is required for mobility. Its incidence in the general population is one in 50,000 people, and we had 4 in Watertown alone! There is no cure at this point, but research is working hard at trying to find that cure. Whether by raising money, or spreading the word, both help. Amanda will be running in New York in the Marathon next month raising money for the cure. When we got done, one individual, Paige McFarlane, came up behind us in her wheelchair to thank us for running for FA. She has FA, and was working the Half Marathon. She was so appreciative, and wanted to have her picture taken with us. That alone made the effort totally worthwhile! This is why we do this!
Even the day before the 5k on Saturday, this overall plan we were thinking of was evolving as the day went. Originally we were just going to wear the shirts in the 5k. But the response we got that first told us we had to wear them the next day too. After all, we are runners. We may sweat, but we don’t stink! Of course we were going to wear the shirts again!
Our rock n roll team was ready to take on anything. It also helped us complete the races. If we got tired, we just thought of those people with FA who cannot run, but wish they could. That was all the motivation we needed.
Sarah and I got to spend some time getting away as well, and yet were still working towards a good cause! I think our finish line photos of Jill, Sarah, and I coming in together pretty much summed up the weekend!
We were joining together for the cause, and we were going to finish together as well. It turned out that helping to spread awareness was really the reason for being there. That in and of itself made the weekend one to remember.
Together we will find a cure. We will help Danny and Ryanne here in Watertown, and Paige in Denver, and to all those other people afflicted with FA in the world. Keep raising money for research. Keep spreading the word so people are even aware of what this is. Keep running and moving because we can. Don’t ever take that for granted. We don’t know when that may change for us. Running races are fun…running for a cause is even more fun…regardless of our race times! Thanks for an amazing weekend Sarah, Jill, Paula, Amanda, Tom, Sue, Kristina, and Mike. Tom you will be running with us next time! Keep moving everybody!
Dr. Dan
Consecutive Exercise Day #: 4046
